Kathy's ALS Blog

My Journey Since Being Diagnosed with ALS




   I was diagnosed with ALS/Lou Gehrig's Disease
        in December 2005.  To read about my initial  
    diagnosis, 
please start by scrolling to the
                        bottom of this site.

 Feel free to submit a comment to me
whenever you visit this page.

 

       Thanks for stopping by!

Your First Granddaughter

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This entry was posted on 10/5/2010 12:07 PM and is filed under uncategorized.


Baby Elyse in Her Room - Three Days Old

On September 12, 2010, we got an opportunity to have access to another part of you. Your first granddaughter, Elyse Kaylee, was born. When I found out I was pregnant last January, I was elated and nervous. I was frightened during early pregnancy as the risk of miscarriage is so high. I dreamed of you every night for two weeks. They weren't scary or sad dreams - we just spent time together laughing, talking and hanging out. I absolutely believe it was your way of comforting me during that overwhelming time. We made it safely through that first trimester and soon we were sharing our exciting news with family and friends.

I got very scared as my due date approached. Not only have I never handled pain well, you had serious issues during labor with me. You suffered from eclampsia - convulsing during my birth, which led to you being in a coma for three days after I was born. When you first awoke you were blind and weren't able to see me right away. Eclampsia can be genetic and I was watched closely. However, my blood pressure was excellent throughout my pregnancy and my physicians had little concern. I did end up having blood pressure issues during my birth. My blood pressure went very high and the baby's heart rate was very low. Neither of us liked labor, but fortunately, as soon as your dear granddaughter was born - all was well. I know you were right there with us during that frightening time.

Your dear granddaughter is so beautiful. She is amazingly healthy and we are already madly in love with her sweet and gentle heart. Mom, I have missed you so badly. I so wish you were here to talk to. I can only imagine how proud you'd be showing off your granddaughter's photos and bragging about how precious she is. You'd be bursting with pride. However, I am comforted knowing my dear daughter has the most special guardian angel. I am absolutely confident you are watching over her.

We love you, Mom. Our daughter was named after the Moms in her life. Her middle name is Kaylee after you, Katherine Lee, my middle name, Lee, and Bill's mother's middle name, Kay. We are so fortunate a part of you is living on in our daughter. We can't wait to tell her all about you. There are some things ALS will NEVER take from us.
 

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Comments

    • 10/5/2010 2:48 PM Lezlie wrote:
      I first commented on this site 4/10/2010...we lost mom 4/22/2010. I couldn't have known it would be so soon.

      I am so happy to see your latest post...a little girl, what a blessing! I have not doubt your mother is watching over her. On the first day of school this year my eight year old cheerfully reported that her Nana was there sitting next to her at lunch! Our mothers will always be with us..and their grandchildren. Congratulations!
      Reply to this
    • 11/21/2010 7:26 AM Yvette Francino wrote:
      I found this site looking for people who had loved ones with ALS, wanting to pass along an idea I implemented.. a recorded Thanksgiving message for my friend, Craig, who is currently living with ALS. (Details are on my site of how to make the call.)

      I stumbled onto your site and I just wanted to say what a tribute it is to your mother that you continue to honor her and speak to her through the blog. I'm sure she is watching over you, your beautiful baby, and sharing the job of all the wonderful events in your life. She'll stay with you always.
      Reply to this
    • 12/12/2010 4:59 PM Teresa wrote:
      Congratulations on your little one. I stumbled across your blog while searching for blogs about people who have lived with ALS. Your and your mother's story just breaks my heart. So sorry for your loss.
      Reply to this
    • 1/11/2011 7:32 AM Melinde wrote:
      I have tears in my eyes, can't keep them back. I live in Johannesburg, South Africa and my mother was diagnosed with ALS in May 2010. I imagine I'm in the same life stage as you are, planning babies etc. and my mom is about the same age your's was when she was diagnosed. Her progression seems to be following the same route as your mom's. She is quite home bound and does need to use the wheelchair when she goes out. Her speech is at the point where we can't speak over the phone some days. (I live about 600miles away) But she has a great support network and I have a wonderfull sister that lives close to her. Words cannot describe how soul destroying this journey is for our family, but reading your blog and just knowing that we aren't alone helps a lot. 2010 was a bad year for us, the last straw was when I miscarried at 7 weeks just before Christmas, but 2011 will bee better. We will hold her, spend time with her, laugh with her, cry with her, hopefully go for an antenatel scan with her and take 1000 000 photos.

      Thank you for giving me someone to just say Hi too.

      Melinde van Rensburg
      Reply to this
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